How do I choose?

Alzheimer’s Australia libraries combined have a collection of over 14,000 resources related to dementia. This year there have been in excess of 8500 loans from our collections.

Undoubtedly a great resource available to the community…but where do you begin?

When visiting the local bookshop we all welcome the influence of an award sticker or a book that proudly boasts itself a staff recommended read.  Taking inspiration from this and to assist our users to navigate our collection we have developed the Alzheimer’s Australia staff recommend sticker.

recommended-read-sticker

Our key criteria

  • Well written/produced
  • Consistently good feedback from borrowers
  • Positive reviews from specialist clinicians
  • The library staff loved it!

So what have our users been borrowing this year? Below is a selection from the top 20 in no particular order.

As always we welcome your feedback and would love to learn what would be on the top of your list.

DVD: Alive inside: A story of music & memory  /  A film by MRossato-Bennett  (2014)

Alive Inside DVDAlive Inside is a joyous cinematic exploration of music’s capacity to reawaken our souls and uncover the deepest parts of our humanity. Filmmaker Michael Rossato-Bennett chronicles the astonishing experiences of individuals around the country who have been revitalized and awakened by the simple act of listening to the music of their youth.

 

Green vanilla tea  /  Marie Williams  (2013)

green-vanilla-tea_smlWhen Marie Williams’ husband Dominic started buying banana Paddle Pops by the boxful it was out of character for a man who was fit and health conscious. Dominic, Marie and their two sons had migrated to Australia to have a life where they shared more family time — when gradually Dominic’s behaviour became more and more unpredictable. It took nearly four years before there was a diagnosis of early onset dementia coupled with motor neurone disease. Marie began to write, as she says, as a refuge from the chaos and as a way to make sense of her changing world.

DVD:  Glen Campbell…I’ll Be Me  (2014)

glen-campbellIn 2011, music legend Glen Campbell set out on an unprecedented tour across America. He thought it would last 5 weeks; instead it went for 151 spectacular sold out shows over a triumphant year and a half. What made this tour extraordinary was that Glen had recently been diagnosed with Alzheimer’s disease. He was told to hang up his guitar and prepare for the inevitable. Instead, Glen and his wife went public with his diagnosis and announced that he and his family would set out on a ‘Goodbye Tour.’ The film documents this extraordinary journey as he and his family attempt to navigate the wildly unpredictable nature of Glen’s progressing disease using love, laughter and music as their medicine of choice.

Fiction: Still Alice  /  Lisa Genova  (2009)

still alice movieAlice Howland is proud of the life she worked so hard to build. A Harvard professor, she has a successful husband and three grown children. When she begins to grow forgetful, she dismisses it for as long as she can, but when she gets lost in her own neighbourhood she knows that something has gone terribly wrong.

 

Caring for a loved one with dementia : a mindfulness-based guide for reducing stress and making the best of your journey together  /  Marguerite Manteau-Rao  (2016)

caring-for-a-loved-oneAn approach to caring with calm, centered presence; responding  with compassion; and maintaining authentic communication, even in the absence of words. Most importantly,  discover ways to manage the grief, anger, depression, and other emotions often associated with dementia care.

 

Before I Forget: How I Survived a Diagnosis of Younger-Onset Dementia at 46  /  Christine Bryden  (2015)
before-i-forget-by-christine-bryden_sml

When she was just 46, Christine Bryden – science advisor to the prime minister and single mother of three daughters – was diagnosed with younger-onset dementia. Doctors told her to get her affairs in order as she would soon be incapable of doing so. Twenty years later she is still thriving, still working hard to rewire her brain even as it loses its function.

 

The 36-hour day : a family guide to caring for people with Alzheimer disease, other dementias, and memory loss in later life  /  Nancy L. Mace, Peter V. Rabins  (2011)

36hrdayInformation on diagnostic evaluation; resources for families who care for people with dementia; legal and financial information;  information on nursing homes and other communal living arrangements; research, medications, and the biological causes and effects of dementia.

 

What the Hell Happened to My Brain? : Living with dementia  /  By Kate Swaffer   (2016)

what-the-hell-happened-to-my-brainKate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia. Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self.

DVD: Filling the day with meaning  /  Teepa L Snow (2011)

Through learning about what makes an activity engaging and valuable, how to create a safe and inviting environment and more with early-onset dementia patients, this DVD helps professional caregivers to provide the best care for people with dementia.

Loving someone who has dementia : how to find hope while coping with stress and grief  /  Pauline Boss  (2011)

loving-someone-who-has-dementiaOffers approaches to understand and cope with the emotional strain of care-giving. Boss’s book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.

 

 

Music and dementia

Music has a transformative effect on people. Whether young, old, happy, sad, with dementia, without dementia, music enriches our lives and helps us access cherished memories. Today’s post provides information on resources about the importance of music to people with dementia and the potential for music to contribute to a higher quality of life in myriad ways.

ConnectingThruMusicBook: Connecting through music with people with dementia : a guide for caregivers  by Robin Rio, 2009

For people with dementia, the world can become a lonely and isolated place. Music has long been a vital instrument in transcending cognitive issues; bringing people together, and allowing a person to live in the moment. Connecting though Music with People with Dementia explains how a caregiver can learn to use melody or rhythm to connect with someone who may be otherwise non-responsive, and how memories can be stimulated by music that resonates with a part of someone’s past.

This user-friendly book demonstrates how even simple sounds and movements can engage people with dementia, promoting relaxation and enjoyment. All that’s needed to succeed is a love of music, and a desire to gain greater communication and more meaningful interaction with people with dementia. The book provides practical advice on using music with people with dementia, including a songbook suggesting a range of popular song choices and a chapter focusing on the importance of caregivers looking after themselves as well as the people they care for.

Suitable for both family and professional caregivers with no former experience of music therapy, and for music therapy students or entry level professionals, this accessible book reveals many useful techniques used in music therapy by experienced professionals.

dementia journalArticle: Music therapy: A nonpharmacological approach to the care of agitation and depressive symptoms for nursing home residents with dementia by Kendra D Ray and Mary S Mittleman, Dementia October 29, 2015

Depression, agitation, and wandering are common behaviors associated with dementia and frequently observed among nursing home residents. Even with pharmacological treatment, behaviors often persist, hindering quality of life for elders, their family, and paid caregivers. This study examined the use of music therapy for treatment of these symptoms among 132 people with moderate to severe dementia in nursing homes. Participants were evaluated for depressive symptoms, agitation, and wandering to determine their predominate behavior. There were two assessments, two weeks apart, prior to intervention, followed by a two-week intervention, and two follow-up assessments, also two weeks apart. A repeated measures ANOVA determined that after two weeks of music therapy, symptoms of depression and agitation were significantly reduced; there was no change for wandering. Multivariate analyses confirmed a relationship between music therapy and change in neuropsychiatric symptoms associated with dementia. Results suggest widespread use of music therapy in long-term care settings may be effective in reducing symptoms of depression and agitation.

Note: should you be interested in this article please request it through our handy form.

DVD: Alive inside: A story of music & memory. A film by Michael Rossato-Bennett, 2014Alive Inside DVD

Alive Inside is a joyous cinematic exploration of music’s capacity to reawaken our souls and uncover the deepest parts of our humanity. Filmmaker Michael Rossato-Bennett chronicles the astonishing experiences of individuals around the country who have been revitalized and awakened by the simple act of listening to the music of their youth.

You can view the trailer for this wonderful film below:

radio nat article 2Radio program: Music of memory – All In The Mind, Radio National, Sunday 8 November 2015 5:05PM

All In The Mind explores the work documented by the documentary Alive Inside. This radio program is available as on-demand, a downloadable audio file or a written transcript.  Below is an excerpt from their synopsis:

“Our relationship with music begins at birth, if not before, and plays a role in the formation of our identity when we are young. Now a heart-warming movement called Music & Memory is creating personalised music playlists for residents with dementia in nursing homes—who use their mobile device to hear it.” RN All In The Mind website, accessed 20 November 2015.

 

dementia journalArticle: But does it do any good? Measuring the impact of music therapy on people with advanced dementia: (Innovative practice) by Karen Gold. Dementia 2014 13(2) p.258-264

This article describes the impact of music therapy upon a group of nine people with advanced dementia in a hospital setting. It demonstrates how the impact of music therapy was measured using the case notes completed by nursing and care staff and how these notes suggested that music therapy had a positive effect on the mood and behaviour on eight of the nine people receiving music therapy.

Note: should you be interested in this article please request it through our handy form.

Sustaining_note_of_hopeReport: Sustaining the note of hope: Music, dementia and meaningful lives by Marsaili Cameron and Belinda Sosinowicz , 2013

The report draws on the presentations, discussions and stories from a creative multidisciplinary seminar in order to:
• outline the emerging shape of dementia services in the UK, and the potential contribution of the arts, especially music, to dementia care.
• offer examples of current excellent practice in this area and provide a list of useful resources.
• provide an overview of the evidence underpinning music and dementia programmes and suggest constructive approaches to evaluation.
• explore the benefits of music and dementia programmes for different stakeholders in different settings, including people with dementia, management and staff of care and support organisations, musicians, commissioners of services and programmes.
• identify the key challenges that need to be met in order for music and dementia activity to grow, along with potential responses to these challenges.
• propose ways of continuing, sharing and expanding the learning from the seminar.

How can you use it?
• to understand the depth and breadth of the potential contribution of music to dementia care.
• to draw on work already done in the field and to make contact with those involved in this work.
• to create dialogue across artistic, academic, clinical and managerial groups about how music can be used effectively in different care settings for people with dementia.
• to develop evidence-based programmes.
• to make a case for funding music-based initiatives and research.

JGN_feb2014Article: Music-Assisted Bathing: Making Shower Time Easier for People with Dementia by Kendra D. Ray, Suzanne Fitzsimmons. Journal of Gerontological Nursing Vol.40, No. 2, 2014, p.9-13

It is estimated that 90% of nursing home residents need assistance with bathing. The purpose of this article is to describe a music-assisted care technique that can be used by caregivers when bathing nursing home residents with dementia. Research suggests that music has many therapeutic benefits for people with dementia. Using music to soothe anxiety can be an effective intervention to assist with lessening of agitation during activities of daily living, especially bathing. This article will provide nursing and direct care staff tools to successfully conduct the music-assisted bathing protocol. Consideration for choosing appropriate music for bathing, the creation of individualized personalized playlists, and acknowledgement of desired outcomes are presented. Incorporating music-assisted bathing may address neuropsychiatric symptoms of dementia by lessening agitation and improving mood, which in turn can increase job satisfaction.

Note: should you be interested in this article please request it through our handy form.

music therapy and neurological rehabilitationBook: Music therapy and neurobiological rehabilitation : performing health  /  Edited by David Aldridge  (2005)

The central tenet of this innovative collection is that identity can be regarded as a performance, achieved through and in dialogue with others. The authors show that where neuro-degenerative disease restricts movement, communication and thought processes and impairs the sense of self, music therapy and neurological rehabilitation can help to restore the performance of identity within which clients can recognise themselves. Emphasis is placed on identity as a chosen performance, not one imposed by a pathological process – the individual is not defined by the disease. The authors show that music therapy is an effective intervention in neurological rehabilitation, successfully restoring the performance of identity within which clients can recognise themselves. It can also aid clients affected by dementia, traumatic brain injury, and multiple sclerosis, among other neuro-generative diseases. Music Therapy and Neurological Rehabilitation is an authoritative and comprehensive text that will be of interest to practicing music therapists, students and academics in the field.

Chapter four of this book focuses on the role of music therapy as an intervention for people with dementia.

jdc_marchapril2015Article: ‘That was an amazing one!’ Music therapy in dementia care by Elizabeth Nightingale, The Journal of Dementia Care, Vol. 23, No. 2, March/April 2015

The story of how music therapy helped to restore one man’s individuality and his relationship with his partner.Elizabeth Nightingale is a music therapist with adults with dementia.

Note: should you be interested in this article please request it through our handy form.

AJDCfebmar14Article: The healing power of music by Vanessa Solomon, Australian Journal of Dementia Care, Vol. 3, No. 1, February/March 2014, p.17-18

Music therapy for people with dementia has been well-documented in many peer-reviewed academic journals, but it is still a relatively underused practice for supporting people with dementia. As a Registered Music Therapist (RMT), I personally experience the benefit of using music therapy for people with dementia, and believe it is one of the most accessible person-centred interventions. It is cost-effective for residential aged-care facilities and enjoyable for residents, staff and families. The best part is that it can facilitate meaningful experiences for people involved in all stages of dementia and is a way of involving their families.

Note: should you be interested in this article please request it through our handy form.

aust_ageing_agenda_mar2014_webArticle: Dementia: Music to their ears by Diana Kerr, Australian Ageing Agenda, March – April 2014, p.52-53

There is a substantial body of evidence showing the crucial role that music plays in support of people with dementia, writes Diana Kerr.

Note: should you be interested in this article please request it through our handy form.

Montessori methods for people with dementia

Montessori methods are now a popular and powerful way to support the lives and capabilities of people with dementia. This post and a previous post offer resources on Montessori activities and how to implement Montessori-based activities.

PurposefulActivitiesMontessoriWebsite: Purposeful activities for people with dementia: a resource, Alzheimer’s Australia VIC, 2015

Purposeful Activities for Dementia is a Montessori-based professional development and education resource developed for aged care and dementia care staff and carers.

Purposeful activities for Dementia complements other professional development resources about engaging people with Alzheimer’s disease and other dementias, including the downloadable Relate Motivate Appreciate toolkit. Purposeful activities for dementia was developed by Alzheimer’s Australia VIC for families and aged care staff.

Purposeful Activities for Dementia offers practical ways that carers – including activity support workers, personal care attendants and other aged care professionals – can work together to engage people living with dementia in purposeful activities at home and in social groups.

The videos by Alzheimer’s Australia VIC on this website explore the way in which Montessori techniques can enrich the lives of people living with dementia. Many of the educational activities in the following video are based on this approach.

dementia journalArticle: Effects of using nursing home residents to serve as group activity leaders: Lessons learned from the RAP project by Michael J. Skrajner, Jessica L. Haberman, Cameron J. Camp, Melanie Tusick, Cristina Frentiu, and Gregg Gorzelle, Dementia: The international journal of social research and practice, Volume 13, Number 2, March 2014

Previous research has demonstrated that persons with early to moderate stage dementia are capable of leading small group activities for persons with more advanced dementia. In this study, we built upon this previous work by training residents in long-term care facilities to fill the role of group activity leaders using a Resident-Assisted Programming (RAP) training regimen. There were two stages to the program. In the first stage, RAP training was provided by researchers. In the second stage, RAP training was provided to residents by activities staff members of long-term care facilities who had been trained by researchers. We examine the effects of RAP implemented by researchers and by activities staff member on long-term care resident with dementia who took part in these RAP activities. We also examined effects produced by two types of small group activities: two Montessori-based activities and an activity which focuses on persons with more advanced dementia, based on the work of Jitka Zgola. Results demonstrate that levels of positive engagement seen in players during RAP (resident-led activities) were typically higher than those observed during standard activities programming led by site staff. In general, Montessori-Based Dementia Programming® produced more constructive engagement than Zgola-based programming (ZBP), though ZBP did increase a positive form of engagement involving observing activities with interest. In addition, RAP implemented by activities staff members produced effects that were, on the whole, similar to those produced when RAP was implemented by researchers. Implications of these findings for providing meaningful social roles for persons with dementia residing in long-term care, and suggestions for further research in this area, are discussed.

Note: should you be interested in this article please request it through our handy form.

you say goodbye_webBook: You say goodbye and we say hello : the Montessori method for positive dementia care by Tom and Karen Brenner, ©2012

This book aims to help dementia caregivers connect with their loved ones-in sometimes surprising ways.

Caregiving for a person with dementia or Alzheimer’s disease can be fraught with frustration, but it all can be rewarding in ways that may surprise a caregiver. Getting to those rewarding moments is the subject of You Say Goodbye and We Say Hello, a new book by husband-and-wife team Tom and Karen Brenner.

You Say Goodbye and We Say Hello is an inspiring, eye-opening look into how using The Montessori Method for memory support and creating a positive environment can deepen the connection between caregivers and the people they love. – Sam Gaines, Managing Editor, Preserving Your Memory Magazine

Article: Montessori based dementia programming® by Michael J. Skrajner [et al]  Alzheimer’s Care Quarterly, Vol. 8, Issue 1, January/March 2007, p. 53-63

Montessori-Based Dementia Programming® (MBDP) is a method of creating and presenting activities/interventions. The Myers Research Institute conducted several studies, each of which involved the use of MBDP in a different setting/situation. Staff members from nursing homes, adult day centres, and assisted living facilities were trained to implement MBDP, as were family members and even persons in the early stages of dementia. In addition, a Montessori-based assessment tool is being developed for use in restorative nursing for persons with moderate to advanced dementia. An overview of each study is provided, as are the findings and implications of each study.

Note: should you be interested in this article please request it through our handy form.

EvalMontPrincReport: Evaluation of Montessori principles in planned activity groups for people with dementia, Australian Centre for Evidence Based Aged Care, La Trobe University, 2015

In 2014, Alzheimer’s Australia Victoria implemented a pilot project to evaluate the impact of Montessori-based activities on the engagement of people with dementia attending planned activity groups (PAG) at two sites in metropolitan Melbourne, Victoria. Funding for the project was provided by the Commonwealth and Victorian governments under the Home and Community Care (HACC) Program. The overall goal of the project was to improve the engagement of people with dementia in purposeful activity by incorporating Montessori principles in planned activity groups.

Findings show that the application of the Montessori principles to activities statistically improved constructive engagement, pleasure and helping among clients in the two participating planned activity groups. The findings also suggest that the Montessori education may improve staff satisfaction and attitudes to people with dementia.

dementia journalArticle: Montessori programming for persons with dementia in the group setting:an analysis of engagement and affect by Shannon E Jarrott, Tsofit Gozali & Christina M Gigliotti,  Dementia, Vol. 7, no. 1 February 2008, p. 109-125

Implementing meaningful activities for persons with dementia reduces boredom, agitation, and negative affect. Previous research demonstrated that Montessori activities, modified for persons with dementia, facilitate positive engagement and affect. We conducted activities in small parallel group settings to support social interactions and reflect typical staff-to-client ratios in institutional activity settings. The amount and type of engagement and affect were compared during Montessori-based activities and regularly scheduled activities of 10 older adults with dementia at an adult day program. Participants exhibited more constructive engagement and less non-engagement during Montessori-activities compared to regular activities. Affect did not differ between the activity conditions. We conclude with a discussion of research and practice methodology modifications.

Note: should you be interested in this article please request it through our handy form.

blog_screen_montessoriBlog: The Montessori Approach for people with dementia, Dementia Resources blog, July 2013

Montessori is a topic close to my heart.  Part of my own schooling was Montessori and my children attend a Montessori school.  For me, what really appeals is the dignity and respect which the students are afforded.  The sense of satisfaction and well-deserved pride they derive from mastering an activity is heart-warming to see.  When I discovered that the Montessori principles were also enriching the lives of people with dementia I was really excited.  It’s such a natural extension of this incredibly flexible, carefully-constructed and intelligent educational philosophy.

This post includes a number of Montessori resources including those of Cameron J. Camp and the popular Relate Motivate Appreciate resource produced by Alzheimer’s Australia VIC.

Gardens for people with dementia

Ah, gardens! Fabulous places. Outdoor spaces are an important part of human life. They offer opportunities for relaxation, connection with nature, the chance to nurture and care for living things and the sensory benefits of sunlight, fresh air, soil and water.  Today’s post offers resources on garden design for people with dementia, the benefits of gardens for aged care facilities and how to successfully implement both outdoor and indoor gardens.

Dig in!

creating culturally approp spacesBook: Creating Culturally Appropriate Outside Spaces and Experiences for People with Dementia: Using Nature and the Outdoors in Person-Centred Care edited by Mary Marshall and Jane Gillard

Demonstrating that it is essential to be sensitive to the cultural backgrounds of people with dementia in order to provide truly person-centred care, this book shows that it is possible to create culturally appropriate outdoor spaces and experiences that resonate with people with dementia on a fundamental level and are a source of comfort and well-being.

Contributors drawn from a variety of backgrounds describe the significance of nature in the lives of people with dementia from diverse cultures, faiths, traditions and geographical locations, providing helpful insights into how access to the natural world may be achieved within different care settings. There are contributions from the UK (Scottish island, urban North East England and Norfolk farming communities), Canada, Norway, Japan, Australia, Sudan and South Africa, as well as a chapter on the specific difficulty of providing access to nature for people with dementia in hospitals. The voices of people with dementia and their carers are prominent throughout, and the book also contains evocative poetry and photographs of people with dementia enjoying nature and the outdoors in different contexts.

A rich source of information and ideas for all those interested in creating culturally appropriate outdoor spaces and experiences for people with dementia, including dementia care practitioners, especially those at managerial level, policy makers, commissioners and those involved in designing and commissioning buildings and services.

JGN_Sept2014Article: Multisensory Installations in Residential Aged-Care Facilities: Increasing Novelty and Encouraging Social Engagement through Modest Environmental Changes by Theresa L. Scott, Barbara M. Masser, Nancy A. Pachana, Journal of Gerontological Nursing, 40(9), 20–31

The current study examined the effect of an indoor simulated garden installation that included visual, auditory, and olfactory stimuli on resident well-being, compared to the effect elicited by a reminiscence installation and a control no-installation condition. A quasi-experimental ABA design was used (i.e., two intervention conditions plus a wait-list control condition). A survey instrument was administered to nursing home residents (N = 33) at three time points (pre-, during, and post intervention) over an 8-week period, which measured mood, behavior, health, and social interaction. Additionally, staff reports (N = 24) were collected. Both the nature-based and non-nature-based installations led to enhanced well-being and significantly more social benefits for residents because of their novel and aesthetic appeal, compared with the control condition. Residents in the nature-based installation condition reported more satisfaction with their living environment during the intervention phase than those in the comparison conditions. The results show that an indoor garden simulation is a relatively inexpensive way to transform a disused indoor area of an aged-care facility for the benefit of residents and staff.

Note: should you be interested in this article please request it through our handy form.

design outdoor spaces pwdBook: Designing outdoor spaces for people with dementia edited by Annie Pollock and Mary Marshall

In many facilities for people with dementia, there is often little or no access to the outdoors and to fresh air. Research shows that there are considerable benefits that come from spending time outdoors and having a good view out from a building. So, why is it that people living with dementia, often have poor access to outside spaces and the benefits that come from being outside?

‘Designing Outdoor Spaces for People with Dementia’ is a book that discusses how to effectively use outside spaces for people with dementia. The book is not an academic guide to research but a book for people in practice. It is filled with case studies of real examples from all over the world. The book is edited by internationally respected Mary Marshall and Annie Pollock.

Featuring authors from Japan, USA, Australia and Norway as well as the UK, the book provides a review of evidence based research supporting the importance of access to outdoor spaces; understanding how to use outdoor spaces appropriately and case studies from around the world describing how to develop and utilise well designed spaces for people with dementia.

The book is written for people who own and commission buildings for people with dementia, Architects and Landscape Architects, Managers of facilities for people with dementia, Medical, nursing and care staff as well as professions allied to medicine such as occupational therapists and physiotherapists and relatives of people with dementia and people living with dementia.

dementia journalArticle: Designing a garden for people with dementia – in a public space by Sally Furness and Jo Moriarty, Dementia, Vol. 5, no. 1 February 2006 p. 139-143

Charlecote Park is a Tudor house in Warwickshire, UK where Shakespeare is rumoured to have been once caught poaching. It is set in a deer park that was originally designed by Capability Brown, the famous British 18thcentury landscape gardener who was responsible for redesigning many of the gardens owned by the aristocracy of the time. Both house and garden are now owned by the UK’s National Trust and they are open to the public for the majority of the year. In 2002, the South Warwickshire branch of the Alzheimer’s Society commissioned Sally Furness to manage the creation of a therapeutic garden within a designated plot at Charlecote Park. The choice of site was important. Not only is the park an attractive place that is popular with visitors during the summer but, by integrating a garden for people with dementia into a public space, it was intended to help improve public awareness of the condition.

Note: should you be interested in this article please request it through our handy form.

dementia journalArticle: The Grange Garden Project : A garden for people with dementia – in a day centre by Maggie Weatherby and Jo Moriarty, Dementia, Vol. 5, no. 1 February 2006 p. 143-146

The Grange is a day centre for people with dementia located in north London and run by Haringey council. Although there was a garden at the rear of the building, it consisted of little more than a lawn, two or three mature trees, some overgrown shrubs and a summerhouse. Unsurprisingly, given the unstimulating environment, it was rarely used. This changed in 2002 when Olive Harper, one of the committee members of the Haringey Branch of the Alzheimer’s Society decided to apply for an After Dementia Millennium Award organized by the Alzheimer’s Society. These awards were funded by the Millennium Commission and consisted of grants for carers and former carers of a person with dementia to help them rebuild their lives and make links with their community during and after their caring role. She decided that she would apply for a grant to help set up a Grange Garden Carers Group. The group members wanted to develop the garden as a way of ‘giving something back’ in return for the support that they had received from the centre and to improve the quality of the environment for people with dementia, carers, and staff by providing somewhere in which people could relax, undertake simple horticultural tasks and keep in touch with nature through sensory stimulation.

Note: should you be interested in this article please request it through our handy form.

dementia journalArticle: Parkview House : A garden for people with dementia – in a care home by Simon Pollitt and Jo Moriarty, Dementia, Vol. 5, no. 1 February 2006 p. 146-149

Parkview House opened in 1993 as a care home for people with dementia in north London. It is owned by Sanctuary Housing Association and managed by 2Care, an independent charity supporting older people and people with mental health needs. The building itself is a modern two-storey design and is located in a residential area next to a park. Forty-five people live in the home and the intention is that they should be offered a home for life wherever possible.

Note: should you be interested in this article please request it through our handy form.

designing balconies roof gardensBook: Designing balconies, roof terraces and roof gardens for people with dementia by Mary Marshall, Emeritus Professor, University of Stirling

This book is one of a series to assist providers, architects, commissioners and managers to improve the design of buildings which are used by people with dementia. The book has been produced in response to an increasing number of requests for advice about the provision of outside space for buildings of more than one storey. As land values increase and people wish to remain in familiar inner city areas, we are more likely to see higher multi-storey care homes. This book describes practical ways in which new and existing buildings can maximise opportunities for people with dementia to access outside space using balconies, roof terraces and roof gardens.

AJDC_JunJul2015Article: ‘Why don’t we go into the garden?’, Mark Rendell and Debbie Carroll, Australian Journal of Dementia Care, Vol. 4, No. 3, June/July 2015, p.32-35

Garden designers Mark Rendell and Debbie Carroll collaborated in 2013 to research why gardens around care homes, particularly for people with dementia, were not being used more. Here’s their story.

Note: should you be interested in this article please request it through our handy form.

Article: Sowing seeds of well-being, Cath Manuel, Australian Journal of Dementia Care, Vol. 4, No. 3, June/July 2015, p.35

Cath Manuel runs a weekly gardening program for people with dementia on Queensland’s Sunshine Coast. She explains how it works and the joy it brings.

Note: should you be interested in this article please request it through our handy form.

Article: Delighting the senses, Australian Journal of Dementia Care, Vol. 4, No. 3, June/July 2015, p.35

Use of gardens in Resthaven aged care service, South Australia.

Note: should you be interested in this article please request it through our handy form.

HealingGardensBook: Healing gardens : therapeutic benefits and design recommendations edited by Clare Cooper Marcus, Marni Barnes, 1999.

Unique and comprehensive, Healing Gardens provides up-to-date coverage of research findings, relevant design principles and approaches, and best practice examples of how for more and more people, the shortest road to recovery is the one that leads through a healing garden. Combining up-to-date information on the therapeutic benefits of healing gardens with practical design guidance from leading experts in the field, Healing Gardens is an invaluable guide for landscape architects and others involved in creating and maintaining medical facilities as well as an extremely useful reference for those responsible for patient care. With the help of site plans, photographs, and more, the editors present design guidelines and case studies for outdoor spaces in a range of medical settings, including: acute care general hospitals; psychiatric hospitals; children’s hospitals; nursing homes; Alzheimer’s facilities; hospices.

JDC_NovDec2007Article: The Dementia Care Garden: part of daily life and activity by Garuth Chalfont, Journal of Dementia Care, Vol. 15, No.6, November/December 2007, p.24-28

In this first of two articles, Garuth Chalfont discusses the benefits to people with dementia of everyday contact with gardens and the natural world, and gives guidance on how care homes can make engaging with nature a normal, regular aspect of daily life.

Note: should you be interested in this article please request it through our handy form.

JDC_JanFeb2008

Article: The Dementia Care Garden: innovation in design and practice by Garuth Chalfont, Journal of Dementia Care, Vol. 16, No.1, January/February 2008, p.18-20

In the second of two articles, Garuth Chalfont gives practical advice on creating a Dementia Care Garden, and presents a case study showing how one care home improved and integrated three garden areas.

Note: should you be interested in this article please request it through our handy form.

Creating a dementia-friendly nation – Dementia Awareness Month

dementia friendly nationEvery September we work extra, extra hard to draw Australia’s attention to dementia and this September is no exception. Our focus this year is Creating a dementia-friendly nation.  A dementia-friendly nation encourages Australians to become dementia-aware and to have a better understanding of what it is like for a person to live with dementia. We are keen to help communities become dementia-friendly, where people with dementia feel understood, engaged, included and valued.

During September there will be a range of events that you may be interested in attending. Here’s an excerpt from the calendar, you can find the full schedule of events here:

14 September: Memory Walk and Jog Geelong. Find out more info or register for this event.

18 September: Dementia Awareness Month Public Lecture: Dementia-friendly concepts and communities by Steve Milton. Steve Milton is one of three directors of Innovations in Dementia, a not-for-profit community interest company in the UK. Innovations in Dementia work with people with dementia, partner organisations and professionals to develop and test projects that enhance the lives of people with dementia. Steve takes a leading role on dementia-friendly communities – and despite their small size – Innovations in Dementia’s work in this area has been highly influential in the UK, which made the creation of dementia-friendly communities a priority of the Prime Ministers Dementia Challenge in 2012. Register for this event. Or download a flyer with more information on the event.

21 September: World Alzheimer’s Day

Activities are planned for all over Victoria, take a squiz at the Calendar of Events which includes detail on Melbourne-based and regional events. Whether you’re in Glen Waverley, Leongatha or Mildura, we have something for you.

 

 

 

The Montessori Approach for people with dementia

RelateMotivateAppreciate-Bklet_blog

New resource from Alzheimer’s Australia, helping you positively connect with people with dementia

UPDATE October 2015: There is now a second post on Montessori methods for people with dementia on this blog.  Check it out for more Montessori resources.

Montessori is a topic close to my heart.  Part of my own schooling was Montessori and my children attend a Montessori school.  For me, what really appeals is the dignity and respect which the students are afforded.  The sense of satisfaction and well-deserved pride they derive from mastering an activity is heart-warming to see.  When I discovered that the Montessori principles were also enriching the lives of people with dementia I was really excited.  It’s such a natural extension of this incredibly flexible, carefully-constructed and intelligent educational philosophy.

In more fabulous Montessori-and-dementia news, Dr Cameron Camp PhD and Director of Research, Centre for Applied Research in Dementia, Ohio USA has joined us in Australia to help Alzheimer’s Australia launch “Relate, Motivate, Appreciate: promoting positive interactions with people living with dementia”.  This series of Family Workshops is aimed at family carers and will give carers the knowledge to enable persons living with dementia to be engaged in meaningful activity throughout the day. Workshop participants will receive the recently launched resource RELATE, MOTIVATE, APPRECIATE: Montessori Resource – more about that below.

Resource: RELATE, MOTIVATE, APPRECIATE: An Introduction to Montessori Activities, Alzheimer’s Australia

This introduction to Montessori activities focuses on the elements of a meaningful interaction with someone living with dementia. The booklet outlines why the Montessori approach works, describes the “RELATE, MOTIVATE, APPRECIATE” model and the principles of engagement under this approach. A DVD is included to provide some visuals to further guide the approach.

Resource: RELATE, MOTIVATE, APPRECIATE: A Montessori Resource, Alzheimer’s Australia

RelateMotivateAppreciate-resource_webPeople with dementia are often confronted with what they can no longer do or with the mistakes that they make. Montessori principles are designed to focus on what they can still do. One of the main Montessori principles emphasises using less language, while at the same time promoting non-verbal communication by demonstrating everything that you would like the person to engage with. This book includes 28 activities. The activities are grouped under 5 themes: watching, listening, touching, smelling and tasting. These activities are a starting point that will hopefully serve as inspiration for you to think of activities that the person will enjoy.

YouTube video: Demonstration of Montessori activity, Alzheimer’s Australia

This 7.44 min video shows how to conduct the activity “Feeling different fabrics”.

Book: Montessori-Based Activities for Persons with Dementia: Volume 1, Dr C. Camp

Montessori-based activites vol1This manual is designed to provide people with dementia with cognitive stimulation and opportunities to successfully and meaningfully interact with their physical and social environments on a regular basis. We all have basic needs and many of the problem behaviors associated with dementia can be traced to the inability to meet one or several of these basic human needs. Montessori-Based Activities  for Persons with Dementia: Volume 1 provides stimulating, interesting and challenging activities that can be performed successfully as a means of helping persons with dementia meet such needs.

Book: Montessori-Based Activities for Persons with Dementia: Volume 2, Dr C. Camp

montessori_activities_vol2_blogVolume 2 provides new ideas for activities programming for persons with dementia and other cognitive disorders. There are examples of group activities, as well as methods of transforming individualised programming into small and large group activities. Also guidelines for inter-generational activities which bring young and old together and promote mutual care, transmit cultural values, and enrich the lives of everyone involved.  Activities for men are a focus in this manual.

YouTube video: A Different Visit: Montessori-Based Activities for People with Alzheimer’s Disease, Dr C. Camp and Centre for Applied Research in Dementia

This is an 8-minute presentation by Dr. Cameron Camp of the Center for Applied Research in Dementia created to help families and friends have purposeful and rewarding visits with loved ones who have memory loss due to Alzheimer’s disease or other types of dementia. The presentation centers on the use of Montessori-based activities, which are effective in engaging persons with memory loss.

Book: Montessori Methods for Dementia™: Focusing on the Person & the Prepared Environment, G. Elliot

montessori methods for dementiaThe Montessori Method for Dementia™ is an innovative approach to dementia care that can be adapted for individuals, for groups and as a philosophy of care. The focus is on “doing”. Since programming is created based on individual needs, strengths, interests and abilities, the activities are meaningful to the individuals, thus affording them the opportunity to enjoy an enriched quality of life by remaining purposefully and meaningfully engaged in daily roles, routines and activities of daily living.

Other links

If you’re keen to here’s some links to information on the

Montessori Philosophy, Montessori Australia

Maria Montessori biography, Montessori Australia

UPDATE October 2015: There is now a second post on Montessori methods for people with dementia on this blog.  Check it out for more Montessori resources.