Summer reading and viewing

Here in Melbourne, we are in the midst of a huge heatwave with temperatures in excess of 40 degrees Celsius for the past two days, with two more to go before a cool change this weekend. When it’s too hot to move, what better time is there to pick up a book/watch a movie and sit in front of a fan?  Here’s a selection of recent releases and popular titles on the topic of dementia for your consideration.

Remember: want anything? If you’re a member we can post it out to you. Many of these titles should be available from your local library as well. Don’t leave that position in front of the fan unless you are heading back to the fridge for more ice in that water!

Fiction: Hateship, friendship, courtship, loveship, marriage, Alice Munro

Hateship, friendship, courtship, loveship, marriage coverThis book includes 9 short stories by Nobel Prize in Literature winner, Alice Munro. One story describes the generosity and grace with which a husband accommodates the blossoming romance his wife, a person with dementia, enjoys with a fellow nursing-home resident. Each story is gripping, beautifully detailed and elegantly constructed. I dare you to set this book aside with anything but reluctance once you have opened it.

Teen fiction: Downeast Ledge: A novel, Norman Gilliland

Downeast Ledge book coverChanging times and personal failings have brought life to a standstill for the natives of Ashton, Maine. On the far side of the river that divides the coastal town, the prosperous summer residents come and go, seemingly complacent, without having much to do with the locals.

But when Amber Waits crosses the river to take a job as a caregiver to a person with dementia, Walter Sterling, all bets are off. She finds herself thrown into the troubled lives of Walt, his distracted wife Geneva, and their resentful and reckless daughter Karen.

Walt begins to exert a strange influence on Amber and her friends. Karen becomes determined to make a dream come true by taking up with Robin Dunning, a local seafarer with a shadowy past and questionable future. As Amber tries to fend off one catastrophe after another, she has to muster her courage and resourcefulness to save her friends and herself.

DVD: Away from her

away_from_herAfter forty years of marriage, Grant (Gordon Pinsent) and Fiona (Julie Christie) are still deeply in love and live an idyllic life of tenderness and serenity. It is only when Fiona begins to show signs of memory loss that cracks in their relationship show. Helplessly, Grant watches as he becomes a stranger to Fiona as her memory rapidly starts to deteriorate. Lyrical and heart-wrenching, Away From Her is a poignant love story about letting go of what you can’t live without.

Fiction: Still Alice, Lisa Genova

Still Alice coverThis is a very popular book in our library. The story is told from the perspective of the person with younger onset dementia, Alice Howland. It has been translated into 25 languages and this year will be made into a feature-length film starring Julieanne Moore (love!).  Here’s an excerpt from the précis:

Alice Howland is proud of the life she has worked so hard to build. A Harvard professor, she has a successful husband and three grown children. When Alice begins to grow forgetful at first she just dismisses it, but when she gets lost in her own neighbourhood she realises that something is terribly wrong. Alice finds herself in the rapid downward spiral of Alzheimer’s disease. She is only 50 years old.

While Alice once placed her worth and identity in her celebrated and respected academic life, now she must re-evaulate her relationship with her husband, her expectations of her children and her ideas about herself and her place in the world. Losing her yesterdays, her short-term memory hanging on by a couple of frayed threads, she is living in the moment, living for each day. But she is still Alice.

Memoir: Losing Clive to Younger Onset Dementia, Helen Beaumont

Losing CliveClive Beaumont was diagnosed with Younger Onset Dementia at age 45, when his children were aged just 3 and 4. He had become less and less able to do his job properly and had been made redundant from the Army the year before.
Clive’s wife, Helen, tells of how she and the rest of the family made it through the next six years until Clive died: the challenge of continually adapting to his progressive deterioration; having to address the legal implications of the illness; applying for benefit payments; finding nursing homes; and juggling her responsibilities as a wife, a mother and an employee. She also describes the successful founding and development of The Clive Project, a registered charity set up by Helen and others in a bid to establish support services for people with Younger Onset Dementia.
Younger Onset Dementia is comparatively rare, but not that rare. This story is for the family and friends of people with the condition, for the people themselves, and for the professionals working with them.

DVD: Iris

Iris DVD cover

Judi Dench and Kate Winslet bring to the screen one of the most extraordinary women of the 20th century, celebrated English author Iris Murdoch. As told by her unlikely soulmate, husband John Bayley, Iris first became known as a brilliant young scholar at Oxford whose boundless spirit dazzled those around her. Then, during a remarkable career as a novelist and philosopher, she continued to prove herself a women ahead of her time. Even in later life, as age and illness robbed Iris of her remarkable gifts, nothing could diminish her immense influence or weaken the bond with her devoted husband.

Fiction: Left Neglected, Lisa Genova

Left Neglected book coverWhilst not about dementia, this novel outlines acceptance of a dramatically changed life and provides wonderful detail on the cognitive and perceptual processing changes that accompany neurological change. Here’s the précis for more information:

Sarah Nickerson is like any other career-driven supermum in the affluent suburb where she leads a hectic but charmed life with her husband Bob and three children. Between excelling at work; shuttling the kids to football, day care, and piano lessons; convincing her son’s teacher that he may not, in fact, have ADD; and making it home in time for dinner, it’s a wonder this over-scheduled, high-flyer has time to breathe.

Sarah carefully manages every minute of her life, until one fateful day, while driving to work, she looks away from the road for one second too long. In an instant all the rapidly moving parts of her jam-packed life come to a screeching halt. A traumatic brain injury completely erases the left side of her world. For once, Sarah must relinquish control to those around her, including her formerly absent mother. As she wills herself to recover, Sarah must learn that a happiness greater than all the success in the world is close within reach, if only she slows down long enough to notice.

Teen fiction: Curveball: The Year I Lost My Grip, Jordan Sonnenblick

Curveball book coverAfter an injury ends former star pitcher Peter Friedman’s athletic dreams, he concentrates on photography which leads him to a girlfriend, new fame as a high school sports photographer, and a deeper relationship with the beloved grandfather who, when he realizes he has dementia, gives Pete all of his professional camera gear. Here’s some more from the précis to whet your appetite:

Pete’s freshman year doesn’t turn out as planned. A pitching accident over the summer ruins his arm. If he can’t play baseball, what is he supposed to do? If he isn’t the star pitcher, then who is he? Pete’s best friend and pitching partner, AJ, doesn’t believe Pete—he tells him he’ll be back to his normal self by spring training. To make matters more complicated, there’s something going on with Pete’s grampa—he’s acting weird and keeps forgetting important things, and Pete’s mother doesn’t want to talk about it.

Dementia resources for kids and teens

Explaining dementia is tough at any age, and when your children or grandchildren are feeling the effects of interacting with a person with dementia it can be difficult to know how to frame the discussion with them. Today we’ve focused on showing you items in our collection that can support those discussions and enable kids to investigate on their own terms.

We’ve divided up our resources based on age-ranges, but please use these as a guide only.  Choose the most relevant resources based on what you intuitively feel will appeal most to your audience!

Early Primary School kids (aged 5+)

Book: Wilfrid Gordon McDonald Partridge, M. Fox

WilfredGordonWilfrid Gordon McDonald Partridge, knows and likes all of the old folks in the home next door, but his favorite is Miss Nancy Alison Delacourt Cooper she has four names, too. Hearing that she has lost her memory, he asks the old folks what a memory is (“Something from long ago” ; “Something that makes you laugh;” “Something warm;” etc.), ponders the answers, then gathers up memories of his own (seashells collected long ago last summer, a feathered puppet with a goofy expression, a warm egg fresh from the hen) to give her. In handling Wilfrid’s memories, Nancy finds and shares her own.

Book: My Gran’s Different, S. Lawson

my_grans_diffCharlie’s gran doesn’t go to the footy, make cakes or work in the garden, because Charlie’s gran is different. A story of the love and complete acceptance that only a child can give.

Book: Let’s Talk About When Someone You Love has Alzheimer’s Disease, E. Weitzman

when_someone_you_love_has_ADKendra thought Grandma had forgotten about her.  This book explains Alzheimer’s from the perspective of an early to mid-primary school aged child.  It explains dementia, the stages of the disease, caring for someone with dementia and what that means, and normalises responses and emotions attached to seeing dementia affect a loved one.

For Mid Primary School kids (aged 6-8)

Book: Grandma Doesn’t Know Me Anymore, E. Gray

grandma_doesnt_know_meThis is the story of 11 year old Andrew, whose grandmother has dementia. Dementia and it’s impact on Andrew and his family is explained simply and thoughtfully.

Book: Grandpa’s Stories, R. Tonkin

grandpas_storiesPatrick’s grandpa loved to tell stories about his childhood – wonderful stories about pet foxes and fun pranks; life as it was when Grandpa was a boy. Patrick has heard these stories often and knows them very well. So when Grandpa struggles with the symptoms of Alzheimer’s disease and has trouble remembering, it is Patrick who must tell Grandpa’s stories.

Book: Sachiko Means Happiness, K. Sakai

sachikoA simply told, understated story of young Sachiko’s acceptance of her grandmother’s Alzheimer’s disease is illustrated in warm, sunset tones, with insets featuring traditional Japanese motifs. The story is touching without being sentimental, and the setting of this small drama makes the book useful for those looking for contemporary images of Asian-American children.

Book: The Smell of Chocolate, B. McGuire

smellofchocolateThis book incorporates a story of Ben and his grandfather, Pog, which captures what living with a person with dementia is like – the highs and the lows. It also contains a very accessible ‘fact file’ on Alzheimer’s, information on brain change, the difference between forgetting and memory loss, ways to connect with someone with dementia, and some messages of hope and insight to conclude the book.

Book: Mile-High Apple Pie, L. Langston and L. Gardiner

mile_high_apple_pieAgainst the background of family life, this picture-book tells the story of a young girl’s evolving relationship, including growing understanding and emotional adjustment, with her grandmother who comes to live with the family when she begins to lose her memory.

For Late Primary School kids (aged 8 – 10)

Booklet: The Milk’s in the Oven

milks-in-oven-rebrand-compI can’t say it better than the intro to this great little booklet, so without further ado…

“Some of you may know somebody who has dementia. Maybe they live with you and you help to take care of them. If so, you won’t need me or anyone else to tell you how difficult and upsetting it can be. You want to look after people you love, but it’s not easy to know what to do for the best when someone has dementia. Often people with dementia forget how to do things, so they might put the milk away in the oven, instead of the fridge. Sometimes you feel really angry because nothing you do seems to make any difference. The booklet tells you about how people with dementia behave and feel, and gives you a few ideas to try and help you understand more.” p. 2
This booklet contains some great exercises for giving kids some insight into what having dementia might be like and ways to connect with a person with dementia. It’s available online. Ah, the wonders of the internet!

Book: Captain Mack, J Roy

captain_mackThis book describes the unlikely friendship between a boy and a man with dementia. Told from Danny, a late primary school-aged boy’s perspective its a unique story about relating to a person with dementia, focusing on the person and not the illness and finding the joy in the connection.

Book: The Memory Box, M. Bahr

When Gramps realizes he has Alzheimer’s disease, he starts a memory box with his grandson, Zach, to keep memories of all the times they have shared.The_memory_box

For Late Primary – Early Secondary

Book: Pearl Verses the World, S. Murphy

pearl_vs_worldA moving illustrated verse novel about a girl dealing with isolation at school, and with her grandma’s illness at home.
At school, Pearl feels as though she is in a group of one. Her teacher wants her to write poems that rhyme but Pearl’s poems don’t. At home, however, Pearl feels safe and loved, but her grandmother is slowly fading, and so are Mum and Pearl. When her grandmother eventually passes away, Pearl wants life to go back to the way it was and refuses to talk at the funeral. But she finds the courage to deliver a poem for her grandmother that defies her teacher’s idea of poetry – her poem doesn’t rhyme; it comes from the heart. A powerful and moving story about loss, grief and isolation. Deals with sensitive issues of dementia from the child’s perspective.

Book: What’s Wrong with Grandma?: A Family’s Experience with Alzheimer’s, M. Shawyer

whats_wrongWhat’s Wrong with Grandma? follows one family’s journey through the early stages of Alzheimer’s disease, as told by the youngest child, Ellen. Along with her family, Ellen tries to fit together all the scattered pieces of puzzle concerning her grandmother’s behavior. Young Ellen expresses, as only a child can, the frustration, sadness, and even anger felt toward Grandma’s peculiar behavior, her lapses of memory, and her unexplained fears. But she also captures the warmth and humor of special moments the family shares with Grandma. Readers will learn, as Ellen does, that there are no simple answers, and that with understanding and love families can embrace their elders with Alzheimer’s and cherish their time together.

Book: Back to Blackbrick, S. Moore Fitzgerald

BackBlackbrickPitched at late primary school kids and early secondary students.  This is a well-written, insightful and modern story of a young care-giver’s struggles to accept the many changes and responsibilities being forced upon him and still connect with the grandfather he knows and loves. It elegantly identifies and articulates the multi-layered strands of grief and loss and day-to-day coping that families experiencing dementia know all too well.‘The ghosts in your life don’t ever really go away. Every so often they will whisper to you, and they will brush past you and maybe you will even feel their misty sweet breath on your skin. It’s fine. Don’t worry about it too much.’

Lost memories, lost times, lost lives – a stunning new debut novel. Cosmo’s brother Brian died when he was ten years old. His mum hides her grief by working all the hours God sends and Cosmo lives with his grandparents. They’ve been carefree days as Granddad buys him a horse called John and teaches him all he knows about horses. But the good times have to come to an end and although he doesn’t want to admit it, Cosmo knows his Granddad is losing his mind. So on one of the rare occasions when Granddad seems to recognise him, Cosmo is bemused that he gives him a key to Blackbrick Abbey and urges him to go there. Cosmo shrugs it off, but gradually Blackbrick draws him in . . . Cosmo arrives there, scared and lonely, and is dropped off at the crumbling gates of a huge house. As he goes in, the gates close, and when he turns to look, they’re rusty and padlocked as if they haven’t been opened in years. Cosmo finds himself face to face with his grandfather as a young man, and questions begin to form in his mind: can Cosmo change the course of his family’s future?

For Teens

Website: When Dementia is in the House

when_dementiaThis website is a truly fantastic thing.  Plain-speaking and to the point, it describes the experience of living with a person with dementia, advice from others in the same situation, pitfalls and how to avoid them and useful information from medical professionals.

Short film: My Name is Lisa, Ben Shelton Films

This utterly brilliant short film illustrates in heart-rending detail what it’s like to live with a parent with dementia. I highly recommend you watch it, although it may be wise to have a tissue or two handy!

Book: Understanding Dementia: A guide for young people

understanding_demAside from a slightly naff name, I mean who exactly are ‘young people’? It’s a confusing term to say the least! This book is pretty great. It identifies common questions, answers them and gives some great suggestions on how to cope and what resources you have to assist you. Also, as well as coming in to grab our copy, you can access it online.

Book: The Long and Winding Road, J Gillard

long_and_winding_roadThe Long and Winding Road describes the different forms of dementia and what happens to people with dementia and to their families. It outlines how young people may be affected and how they may feel, and offers practical suggestions to help overcome some of the difficulties. The book also aims to dispel the fear and loneliness experienced by young people encountering dementia in someone they love. Written in 1995, it’s a piece from our ‘way back collection’ but worth a look.

Book: Fading Memories: An Adolescent’s Guide to Alzheimer’s Disease

fading_memoriesWhen a loved one is diagnosed with Alzheimer’s Disease, the whole family is affected. Fading Memories is written by young people who are coping with Alzheimer’s Disease in their lives. This book outlines what Alzheimer’s Disease is and what happens to a person who has Alzheimer’s. You will find out how you can help care for your loved one with Alzheimer’s, and how you can maintain a positive relationship with the Alzheimer’s patient, your family and friends. In addition to practical information, Fading Memories includes personal essays from adolescents who have experience living with Alzheimer’s first-hand.