Recent dementia publications

This post identifies some recent publications on dementia. These books are all available from the library – if you can’t make it to our Hawthorn location we encourage you to call us on 03 9815 7800 and we can organise to send books to you. Remember, we do need you to be an Alzheimer’s Australia Vic member to provide this service.

Book: Where the Light Gets in : Losing My Mother Only to Find Her Again, Kimberly Williams-Paisley, Foreword by Michael J Fox, 2016

where the light gets inMany know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the”Father of the Bride”movies, the calculating Peggy Kenter on”Nashville,” or the wife of country music artist, Brad Paisley. But behind the scenes, Kim’s mother, Linda, was diagnosed with a rare form of dementia that slowly took away her ability to talk, write and eventually recognize people in her own family. “Where the Light Gets In” tells the full story of Linda’s illness called primary progressive aphasia from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humour and grace. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, “Where the Light Gets In” is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.”

DVD: Looks like Laury, Sounds like Laury, Pamela Hogan & Connie Shulman, 2015

looks like lauryWhat would you do if you started to disappear? At the age of 45, our friend Laury Sacks, an ebullient actress and the doting mother of two small children, had a reputation as the quickest wit in the room. At the age of 46, she began forgetting words. Soon she could barely speak.

Our film, Looks Like Laury Sounds Like Laury, captures one year in the long, but short journey of frontotemporal dementia, a little-understood disease that strikes people in the prime of life.

But back to Laury. She lived on the Upper Westside in Manhattan with her husband, Eric, and their two young children. She had been an actress/writer for many years prior to having kids, and then devoted her time to being a mom and writing a memoir about her unconventional childhood. But a memoir requires memories, and when gregarious Laury suddenly became quiet, she began to have difficulty accessing hers.

The changes were subtle at first. She asked Pam to meet for coffee one day, but it was surprisingly difficult to engage her in conversation. To the question “What’s going on, am I boring you?” she answered prophetically, “No! I’m just in my head. ” Then she offered a reassuring hug – which wasn’t reassuring at all.

Everyone misread the cues: “We’re not as close as we used to be;” “She must be mad at me;” “Maybe she’s depressed.” As Laury’s friend Nelsie said, “I don’t think it ever occurred to us she couldn’t access language, that she was trapped in her brain and couldn’t access it.”

But Laury was an actress, and she was acting the hell out of her new part – a woman disappearing.

The film came about when Connie suggested making a film to capture her mysterious new life – and Laury jumped at the idea. It is the profoundly personal portrait of a woman who is facing the unthinkable. As she says straight to camera the first day of filming: “What do I hope for? I hope for – the truth!” Following Laury through her day to day life over the course of a year, conversations begin to resemble the famous Abbott and Costello comedy sketch “Who’s on First?” as Laury gives rapid-fire “Yes!” “No!” “No-Yes!” answers, and confusion reigns. Her husband Eric senses that not only does she grasp the absurdity of the situation, but “at some level she thinks its funny.”

We started filming during a hopeful period, with no idea of what lay ahead.

Laury was always a storyteller and she wanted to tell her last story herself. This is her story.

Book: A caregiver’s guide to dementia : using activities and other strategies to prevent, reduce and manage behavioral symptoms, Laura N. Gitlin, Catherine Verrier Piersol, 2014

a caregiver's guide“Mom has nothing to do—I’m concerned about her quality of life.”
“My husband gets agitated when I need to leave the house—I don’t know what to do.”
“My father keeps asking the same questions over and over.”

These are some of the common challenges encountered by individuals and families who are caring for a parent, spouse or close relative with dementia. This easy-to-use, practical guide is designed to help at-home caregivers navigate these daily challenges. Although there is no cure for dementia or its many behavioral symptoms, there are clear and proven strategies that can be used to enhance the quality of life for persons with dementia—strategies that can make a real difference for their families.
A Caregiver’s Guide to Dementia explores the use of activities and other techniques to prevent, reduce and manage the behavioral symptoms of dementia. Separate sections cover daily activities, effective communication, home safety and difficult behaviors, with explicit strategies to handle] agitation, repetitive questions, acting-out, wandering, restlessness, hoarding, resistance to care, incontinence, destructiveness, sexually and socially inappropriate acts at home and in public, aggressiveness, depression. Worksheets are provided to help caregivers customize the strategies that work best for them.
The strategies featured in this guide have been used by the authors in their research and reflect approaches and techniques that families have found to be most helpful.

Book: Dementia: pathways to hope : spiritual insights and practical advice, Louise Morse, 2015

dementia pathways to hopeTo be diagnosed with dementia is “like being blindfolded and let loose in a maze”. There is no clear treatment to follow, because each case is unique. But once thickets of misunderstanding and misinformation are brushed aside, there are pathways to hope.

“Secular models of support don’t adequately reflect Christian values of compassion, love and service,” explains Louise Morse. “Neither do they describe the power of spiritual support. This is key to the wellbeing of the caregiver, as well as the person with dementia.”

This book is packed with examples of what works, as well as practical advice and accessible medical information.

Louise Morse is a cognitive behavioural therapist and works with a national charity whose clients include people with dementia. Her MA dissertation, based on hundreds of interviews, examined the effects on families of caring for a loved one with dementia.

Fiction: Unbecoming, Jenny Downham, 2015

unbecomingThree women – three secrets – one heart-stopping story. Katie, seventeen, in love with someone whose identity she can’t reveal. Her mother Caroline, uptight, worn out and about to find the past catching up with her. Katie’s grandmother, Mary, back with the family after years of mysterious absence and ‘capable of anything’, despite living with Alzheimer’s disease. As Katie cares for an elderly woman who brings daily chaos to her life, she finds herself drawn to her.

 

YouTube: Living with Dementia, Alzheimer’s Australia, 2016

This is also available as a DVD from our library.

Ministering to people with dementia

This post describes our resources on ministering to people with dementia. Should you be interested in any of these resources, you can request them using this handy form.

JDCJulyAug2004Article: Spirituality, religion and faith in dementia care by Malcolm Goldsmith, Journal of Dementia Care 12(4), 2004

Despite the many definitions of ‘spirituality’, there is an increasingly united sense of its importance in dementia care. Malcolm Goldsmith reflects on what religious and spiritual ideas have to offer, and on relations between churches and people with dementia.

Note: should you be interested in this article please request it through our handy form.

spirituality and ageingBook: Spirituality and Ageing edited by Albert Jewell, 1999

This book presents the experience of ageing as an opportunity for spiritual reflection and affirmation of life. The contributors are religious and spiritual leaders and ethical thinkers from a range of different backgrounds. They define ‘spirituality’ not just as a religious concept but as the fulfillment of the universal human need for purpose, values and relationships – a sense of wholeness in life. This spiritual dimension helps people face the emotional and psychological challenges of growing older, such as memory loss, dementia, bereavement and fear of death. Existing systems of social care often focus on the material and physical needs of older people; this collection proposes that the spiritual needs for older people are as vital a consideration for their welfare. Through their spirituality, older people can attain a fuller appreciation and understanding of life, which can also inform and enrich the lives of others. Spirituality and Ageing will be an invaluable resource for carers looking for a holistic and more reflective approach to work with other people.

guideministeringalzheimerspatienBook: Guide to Ministering to Alzheimer’s Patients and Their Families, Pat Otwell, 2007

Guide to Ministering to Alzheimer’s Patients and Their Families examines the importance of spirituality in dealing with the everyday challenges of this mysterious disease. Not a “how-to” manual with step-by-step instructions or tried and true formulas, this unique book instead examines the essential elements of ministering to dementia patients based on first-hand accounts of family members living through pain and uncertainty. The book explores the nature and stages of Alzheimer’s: the desire to minister; theological understanding; grief and guilt; communicating with Alzheimer’s patients; spiritual needs and implications for spiritual care; ethical issues and the role of ministry in decision-making; models for ministry; faith, hope, and love; blessings; and resources. This book is designed for all who desire to minister to those affected by Alzheimer’s – especially pastors, priests, chaplains, pastoral counselors, church leaders, healthcare professionals, and seminary students.

JDCMayJune2003Article: Holding a religious service for people with dementia by Patricia Higgins, Journal of Dementia Care 11(3), May/June 2003

Patricia Higgins looks at how holding a religious ceremony can enrich life and well-being for people with dementia.

Note: should you be interested in this article please request it through our handy form.

ministeringpeoplewdementiaGuide: Ministering to people with dementia: a pastoral guide, Catholic Health Australia, 2008

inistering to People with Dementia: A Pastoral Guide , produced by Catholic Health Australia in cooperation with Alzheimer’s Australia is a practical handbook for the spiritual care of people with dementia. The Guide has been written expressly for those working in parish settings to assist in the provision of spiritual care of parishioners with dementia both at home and in residential care within the local community.

inastrangelandBook: In a strange land… : people with dementia and the local church : a guide and encouragement for ministry, Malcolm Goldsmith, 2004

About one person in twenty over the age of sixty-five and about one in five over the age of eighty have dementia. These people will have spouses, partners, children, relatives and friends. It is likely therefore that just about every church congregation and community will have a number of people affected, directly or indirectly, by dementia.

    • How do clergy and lay leaders, members of the congregation and others understand, relate to and support these people?
    • What happens to the faith of people with dementia? How do their carers cope with faith issues?
    • What happens when people move into residential or nursing homes or into hospital? What forms of ministry are appropriate?

This book, written by someone who has spent many years as a parish priest is full of reflections and suggestions. It is an attempt to guide and encourage people in this important but often neglected area of ministry.

Spirituality the heart of nursingBook: Spirituality : the heart of nursing edited by Professor Susan Ronaldson, foreword by Professor Mary Bailey, 1997

People in many cultures have long been aware of themselves as having a spirit as well as body and as being influenced by spiritual energies and spiritual presences.

Nurses know that something exists beyond the day-to-day care of people. Nurses are with people in time of crisis, when the mind turns to thoughts of what exists beyond. When a nurse can help someone to confront issues of doubt and belief, the sense of fulfillment explains why nurses do what they do.

This is a book to pick up and delve into. The chapters are written by experienced nurses in a style and language that is easy to understand. Here you will find knowledge and ideas that may help you make your own spiritual journey as well as helping people in your care to make theirs.

Spirituality:The Heart of Nursing is written by Australia nurses, from their own experience, for the benefit of other nurses. The message of the book is that nurses are special people conscious that our spiritual well-being is just as important as our physical health.

Spirituality and dementia

Spirituality is an essential part of many people’s lives and can manifest itself in unique ways. This post explores the role spirituality plays for people with dementia as well as for carers and how those around them can support the ongoing need for the spiritual aspects of life.

BetweenRememberingBook: Between remembering and forgetting: The spiritual dimensions of dementia edited by James Woodward, 2010

We are increasingly aware of the economic and emotional cost of dementia, but its spiritual dimension is often overlooked. Between Remembering and Forgetting brings together contributions from distinguished and experienced practitioners in the front line of dementia research and care to reflect on this, and to explore the implications for Churches and other faith groups, as well as for individual carers. A practical focus offers not only a critique of areas for future research and development in the field of dementia, but also directs the reader to further resources. The Editor was for ten years Director of The Leveson Centre, which brings together for study, reflection and the exchange of ideas and information those who believe that older people should not be considered passive recipients of care, but as valued and cherished members of society who can inform and enrich the lives of others. In particular the Centre is developing an understanding of spirituality as lived by older people, and aims to support them to express their spiritual awareness.

Dementia - Frank and LindaBook: Dementia: Frank and Linda’s Story: New understanding, new approaches, new hope, 2010

Frank and Linda have been together since their schooldays. They married, ran a guest house and raised children – then Frank developed dementia. “I’m losing my best friend,” said Linda. Frank’s story is almost over, but had he been born twenty years later it might have been different.

Today, thanks to a better understanding of how the brain works and how it is affected by dementia, experts and carers have developed a new way of caring that can help to hold the person together, reinforcing their individuality and even allowing them to live contentedly.

Frank and Linda’s story powerfully depicts this new approach to caregiving. It focuses on the three important aspects of dementia care – living, helping and spiritual support. Built on the foundational Christian belief in the sanctity and meaning of life, the book is filled with pointers and information, including a detailed appendix that lists organisations around the world that offer advice and help.

AJDCAugSept2014Article: Carers reveal their spiritual, emotional needs, Fiona Calvert, Australian Journal of Dementia Care 3(4), August/September 2014, p.37

Researchers from Charles Sturt University investigated the spiritual needs of carers of people with dementia. The themes of connectedness, personal well-being of the person with dementia, importance of religious, spiritual and end-of-life issues and meaning and hope were identified by the family members of a recently-deceased person with dementia.

This summary article is based on a study published by Slape J (2014) Dementia and palliative care: the spiritual needs of family members. Journal of Religion, Spirituality & Aging 26 215-230.

Note: should you be interested in this article please request it through our handy form.

vital_connectionsBook: Vital Connections in Long-Term Care: Spiritual Resources for Staff and Residents by Julie Barton, Marita Grudzen and Ron Zielske, 2003

That spirituality is an integral component of the total well-being of older adults is being increasingly recognised. Now staff in long-term care settings can see compelling reasons for integrating spiritual care into daily care and realistic ways of putting it into practice.

Vital Connections in Long-Term Care provides an abundance of practical lessons, exercises, discussion questions, multicultural and interdenominational case examples, journaling opportunities, and implementation suggestions that can be used to sensitize staff and others to residents’ spiritual needs and the ways that these needs may be supported through special functions and everyday interactions. Learn how to: assess a resident’s spiritual needs : transcend religious orientation ; build a sense of community ; bring a spiritual dimension to celebrations and rituals ; use spirituality to help people cope with pain ; use familiar religious routines to reassure disoriented residents ; broaden application of spirituality during mealtimes ; help people cope with end-of-life issues ; and much more.

Vital Connections will help directors of nursing and nursing staff, administrators, care managers, social workers, activity directors, occupational and physical therapists, in-service trainers, instructors in aging and spirituality courses, and chaplains and parish nurses enhance their practice and transform residential care facilities into sacred spaces.

GuideCulturalSpiritualAwarenessGuide: A guide to cultural and spiritual awareness: Nursing Standard Essential Guide by Jean Serge Mootoo, 2005

This useful resource outlines the core aspects of different religions and cultures. It covers specific beliefs around personal care, death, naming and other important religious and cultural traditions. For those wanting to understand more about different cultures and religions or for those working in an aged care or hospital setting, it is a great introduction.

 dementia journalJournal: Dementia: the international journal of social research and practice: Special Issue on Spirituality and Dementia 2(3), October 2003

This special issue of Dementia brings together three perspectives related to dementia care, religion, and spirituality; the diagnosed; the family caregiver; and the clinician. It is notable that a common message is found in all three perspectives. Specifically, issues of religion and spirituality must not be ignored in the dementia experience. Spirituality and religion are significant resources – across a wide spectrum of faith perspectives – for coping with a diagnosis of dementia. (Stuckey and Gwyther (2003) Dementia 2(3), p. 291)

Editorial – Dementia, religion, and spirituality by Jon C. Stuckey and Lisa P. Gwyther, p.291

Note: should you be interested in this article please request it through our handy form.

Satisfactions and challenges in spiritual faith and practice for persons with dementia by Lisa Snyder, p.299

In the past decade, there has been greater attention given to the role of religion and spirituality in coping with Alzheimer’s disease and related dementias. This research has focused largely on caregivers with much less attention given to those afflicted with the disease. This qualitative study examines the role of religion and spirituality in the lives of persons with dementia. Quotes from 27 individuals with Alzheimer’s and one person with frontal temporal dementia reveal the following themes: the role of religion or spirituality in finding meaning in dementia; the role of religion or spirituality in coping with the disease; the influence of dementia on religious or spiritual practices; and the influence of dementia on faith. Findings illuminate the importance of including the perspective of the person with dementia in assessments and interventions aimed at understanding and addressing the spiritual needs of families.

Note: should you be interested in this article please request it through our handy form.

Personal spirituality of persons with early-stage dementia: is it related to perceived quality of life? by Towako Katsuno, p.315

During times of stress and uncertainty, research has documented that individuals may turn to religion and spirituality as coping resources. But what about those with dementia who have a decreased cognitive capacity? Do they also turn to religion and spirituality and are these coping resources related to overall quality of life? The objective of this study was to describe the spiritual experiences of persons with early-stage dementia and to explore the relationship between personal spirituality and perceived quality of life. Twenty-three participants were interviewed using: a semi-structured interview guide; the System of Belief Inventory (SBI); and the Quality of Life Index (QLI). Qualitative data analysis illuminated an overall theme of `faith in God’ and six related categories: beliefs; support from God; sense of meaning/purpose in life; private practice; public practice; and changes due to dementing illness. There were significant relationships between the SBI scores and the QLI scores. Findings suggest that those with early-stage dementia often find personal spirituality and its internal meanings important in coping with their life situations, that is, spirituality is associated with their perceived quality of life.

Note: should you be interested in this article please request it through our handy form.

Faith, aging, and dementia: experiences of Christian, Jewish, and non-religious spousal caregivers and older adults by Jon C. Stuckey, p.337

Research consistently documents positive relationships among religion, spirituality, and outcomes related to well-being. The purpose of this study was to determine the degree to which spousal dementia caregivers and other older adults rely on religion and spirituality as coping resources. A total of 52 Christian, Jewish, and non-religious dementia caregivers – as well as matched comparison groups of non-caregivers – were interviewed. Qualitative data analysis yielded both common themes among the three religious groups as well as themes of distinction. The findings suggest that the search for meaning and purpose during stressful life events knows no religious or spiritual borders. Even among the non-religious and non-spiritual, purpose and meaning were found in other areas, including in caring for others, in friendships, or simply in the aesthetic joys of life.

Note: should you be interested in this article please request it through our handy form.

Spirituality in multicultural caregivers of persons with dementia by Carol J. Farran, Olimpia Paun and Mary Horton Elliot, p.353

This qualitative study examined spirituality in a multicultural group of caregivers of persons with dementia. The work was based upon earlier focus groups that centered on general outreach to African-American caregivers. While initial questions focused on caregiving experiences, service needs, and barriers to service use, caregivers spontaneously shared their experiences concerning spirituality and caregiving. In an effort to respond to these comments and embrace a more expanded outreach approach, successive focus groups specifically addressed questions about spirituality and caregiving. Using semi-structured questionnaires, three focus groups with existing community-based groups were conducted (N = 43). Four major categories emerged from the data: teachers of the faith; the role of faith in one’s life; benefits of spirituality; and the caregiver, the care-receiver and the caregiving experience. These major categories were integrated into a spiritual model for the caregiver and the caregiving experience. Findings suggest that community-based outreach approaches should embrace an appreciation for caregivers’ faith development, expressions, and experiences of spirituality; that clinical interventions should be more proactive in responding to spiritual/religious issues; and that future research efforts should refine methods and approaches for a more integrated scientific basis that further examines relationships between spirituality and mental and physical health outcomes.

Note: should you be interested in this article please request it through our handy form.

Religion, spirituality, and ethnicity: what it means for caregivers of persons with Alzheimer’s disease and related disorders by Marcie C. Nightingale, p.379

Caregivers of persons with Alzheimer’s disease (AD) provide an inordinate and escalating level of care. It has been postulated that: (1) religious beliefs and/or spirituality may assist individuals in their caregiving efforts; and (2) coping strategies may vary depending on ethnicity. The intent of this pilot study was to examine these theories by interviewing five African-American and five white caregivers of persons with AD using demographic and open-ended questions regarding spirituality, religious practices, and ethnicity. Five themes were identified regarding the development of the caregivers’ beliefs and practices:

  1. 1. later life development of beliefs;

  2. 2. religious training and practices;

  3. 3. family influences;

  4. 4. impact of ethnicity on caregiving; and

  5. 5. impact of spirituality and religion on caregiving.

All caregivers felt their spirituality and/or religious practices shaped how they approached providing care and all reported that they were influenced by their ethnic background. Most stated that religious practices and spirituality affected how they felt about providing care and that religion and spirituality helped them deal with difficult challenges. Through a better understanding of the importance of different coping mechanisms among caregivers, professionals are able to provide more sensitive care to persons of diverse groups.

Note: should you be interested in this article please request it through our handy form.

Aspects of spirituality in dementia care: when clinicians tune into silence by Robert M. Lawrence, p.393

Clinicians dealing with persons with dementia are usually unable to maintain communication with the individual beyond the available psychometric tests that only give a crude evaluation of the person’s capacity to express thoughts and feelings. Evidence from the elderly with terminal illness and functional psychiatric illness shows that the individual tends to `journey’ back to reassuring and positive experiences and that religious matters are of paramount importance in dealing with terminal illness and death. Normal communication channels are precluded for individuals with dementia, as they gradually lose the ability to use understandable speech. The clinician may partly circumvent loss of communication by gathering a holistic and comprehensive view of the person’s spiritual background at the very outset and by incorporating this holistic view into the care plan.

Note: should you be interested in this article please request it through our handy form.

Spiritual care and the person with dementia: the development of guidelines to support staff working with people with dementia by Daphne Wallace, p.421

This article outlines the production of practical guidelines for spiritual care of people with dementia. The guidelines are applicable in principle for any people in long-term residential and nursing care.

Note: should you be interested in this article please request it through our handy form.

where two worlds touch_webBook: Where Two Worlds Touch: A Spiritual Journey Through Alzheimer’s Disease by Jade C. Angelica, 2014

Jade Angelica shares the wisdom and hope she gleaned from caring for her mother and from many years working closely with Alzheimer’s patients and caregivers. Challenging the predominant belief that people with Alzheimer’s no longer have purpose, potential, or the capacity for meaningful relationship, Where Two Worlds Touch is both a spiritual memoir and a pastoral guide for those who love someone with Alzheimer’s. Readers will find here the reassuring words of a friend who has been there and can give advice on preserving connection, finding hope, self-care, and staying open to the possibility of grace.

ten-thousand-joys-sorrows-book-coverBook: Ten Thousand Joys & Ten Thousand Sorrows: A Couple’s Journey Through Alzheimer’s by Olivia Ames Hoblitzelle, 2010

In this inspiring memoir, Hoblitzelle describes how her husband’s Alzheimer’s diagnosis at the age of seventy-two challenged them to live the spiritual teachings they had embraced during the course of their life together. A former professor of comparative literature at Barnard, Columbia and Brandeis universities, Harrison Hoblitzelle, or Hob as he was called, became a family therapist after a midlife career shift and was ordained a Dharmacharya (senior meditation teacher) by Thich Nhat Hanh. Hob comes to life in these pages as an incredibly funny and brilliant man who continued to amaze everyone around him with his startling insights about his diminishing mind. Together Hob and Olivia agreed to live this last chapter of his life as consciously and lovingly as possible. The fruit of their journey is this wise and compassionate book, which provides guidance on maintaining hope and grace in the face of life’s greatest challenges.

spirituality and personhoodBook: Spirituality and personhood in dementia by Albert Jewell, 2011

In recent years, there has been a positive shift in attitudes towards caring for older people with dementia, with a new emphasis being placed on the person rather than the problem and towards a relationship-centred rather than individual approach. Within this context of person-centred care, there is a growing recognition of the significance of a person’s spirituality in providing them with a sense of identity and a resource for coping. Spirituality and Personhood in Dementia offers an interdisciplinary discourse on spirituality in dementia care, bringing together wide-ranging contributions from leading theoreticians, theologians, researchers and practitioners. The book provides health care professionals with both a rationale and a practical understanding of the important role spirituality can play in the affirmation of personhood. This comprehensive and thought-provoking collection includes contributions from international authors, discussion of inter-faith relations and spirituality for the non-religious, as well as chapters approaching the subject from Christian and Buddhist perspectives. This book will be valuable reading for nurses, care workers, care commissioners and pastoral support professionals interested in a more holistic and contemplative approach to caring for older people with dementia.

JDCJulyAug2008Article: Soul Sessions by Marjorie Woodbridge, Journal of Dementia Care 16(4), 2008 p.14-15

The author shares her experience of sessions which aim to meet the spiritual needs of people with dementia. Soul Sessions started as an experimental programme to meet the spiritual needs of people with dementia living in a long-term care facility in Kingston, Ontario, Canada. The initial goal of the programme was to find ways of making connections that would help these people to express their feelings about life, love and their relationship with the Divine.

Note: should you be interested in this article please request it through our handy form.

JGN_July2014Article: Revisiting Spirituality in Aging by Barbara J. Edlund, Journal of Gerontological Nursing 40(7), 2014, p.4-5

An analysis on the findings of a number of studies on successful aging and the role of spirituality as a component of aging and care-giving by nurses.

Note: should you be interested in this article please request it through our handy form.

JDCJulyAug2004Article: Understanding spirituality: tuning in to the inner being by Murray Lloyd, Journal of Dementia Care 12(4), 2004, p.25-27

Murray Lloyd discusses a step-by-step approach to a view of dementia care through ‘spiritually enhanced active listening’, engaging fully with the person with dementia in the context of their spiritual needs and expressions.

Note: should you be interested in this article please request it through our handy form.

who_will_i_be_when_i_die_webBook: Who will I be when I die? by Christine Bryden, 1998

For many, Alzheimer’s is a mystery disease affecting old people. Christine Boden was 46 when she was diagnosed with Alzheimer’s and Who Will I Be When I Die?, is the story of her emotional, physical and spiritual journey in the three years since then. Christine is living with the stages of Alzheimer’s and provides a unique insight into how it feels to be gradually losing ability to undertake tasks most of us take for granted. Her story is remarkable because of the vigor with which she is undertaking this latest battle in her life and the purpose and meaning she derives from her Christian spirituality. Christine’s approach to health and well-being makes this book a must for Alzheimer’s sufferers and their families.